Pediatric Palliative Care in the Age of eHealth: Opportunities for Advances in HIT to Improve Patient-Centered Communication
Identifieur interne : 000669 ( Main/Exploration ); précédent : 000668; suivant : 000670Pediatric Palliative Care in the Age of eHealth: Opportunities for Advances in HIT to Improve Patient-Centered Communication
Auteurs : Subha Madhavan [États-Unis] ; Amy Sanders [États-Unis] ; Wen-Ying Sylvia Chou [États-Unis] ; Alex Shusterdg [États-Unis] ; Keith Boone [États-Unis] ; Mark Dente [États-Unis] ; Aziza T. Shad [États-Unis] ; Bradford W. Hesse [États-Unis]Source :
- American journal of preventive medicine [ 0749-3797 ] ; 2011.
English descriptors
- KwdEn :
- Adolescent, Child, Child, Preschool, Communication, Female, Humans, Male, Medical Informatics (organization & administration), Medical Oncology (organization & administration), Needs Assessment, Neoplasms (therapy), Palliative Care (organization & administration), Patient Education as Topic (organization & administration), Patient-Centered Care (organization & administration), Pediatrics (methods), Physician-Patient Relations, Prospective Studies, Quality of Health Care, Young Adult.
- MESH :
- methods : Pediatrics.
- organization & administration : Medical Informatics, Medical Oncology, Palliative Care, Patient Education as Topic, Patient-Centered Care.
- therapy : Neoplasms.
- Adolescent, Child, Child, Preschool, Communication, Female, Humans, Male, Needs Assessment, Physician-Patient Relations, Prospective Studies, Quality of Health Care, Young Adult.
Abstract
Pediatric palliative care is an organized method for delivering effective, compassionate and timely care to children with cancer and their families, but it currently faces many challenges despite advances in technology and health care delivery. A key challenge involves unnecessary suffering from debilitating symptoms, such as pain, resulting from insufficient personalized treatment. Additionally, breakdowns in communication and a paucity of usable patient-centric information impede effective care. Recent advances in informatics for consumer health through eHealth initiatives have begun to be adopted in care coordination and communication, but overall remain under-utilized. Tremendous potentials exist in effective use of health information technology (HIT) to improve areas requiring personalized care such as pain management in pediatric oncology patients.
This article aims first to identify communication challenges and needs in pediatric palliative cancer care from the perspectives of the entire group of individuals around the pediatric oncology patient, and then to describe how adoption and adaptation of these technologies can improve patient-provider communication, behavioral support, pain assessment, and education through integration into existing work flows. The goal of this research is to promote the value of using HIT standards-based technology solutions and stimulate development of interoperable, standardized technologies and delivery of context-sensitive information through user-friendly portals to facilitate communication in an existing pediatric clinical care setting.
Url:
DOI: 10.1016/j.amepre.2011.01.013
PubMed: 21521596
PubMed Central: 3703627
Affiliations:
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Le document en format XML
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Shad</name><affiliation wicri:level="2"><nlm:aff id="A1">Lombardi Cancer Center, Georgetown University Medical Center, Washington, DC</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">District de Columbia</region></placeName><wicri:cityArea>Lombardi Cancer Center, Georgetown University Medical Center, Washington</wicri:cityArea></affiliation></author><author><name sortKey="Hesse, Bradford W" sort="Hesse, Bradford W" uniqKey="Hesse B" first="Bradford W." last="Hesse">Bradford W. Hesse</name><affiliation wicri:level="2"><nlm:aff id="A2">National Cancer Institute, National Institutes of Health, Bethesda, MD</nlm:aff><country xml:lang="fr">États-Unis</country><placeName><region type="state">Maryland</region></placeName><wicri:cityArea>National Cancer Institute, National Institutes of Health, Bethesda</wicri:cityArea></affiliation></author></analytic><series><title level="j">American journal of preventive medicine</title><idno type="ISSN">0749-3797</idno><idno type="eISSN">1873-2607</idno><imprint><date when="2011">2011</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adolescent</term><term>Child</term><term>Child, Preschool</term><term>Communication</term><term>Female</term><term>Humans</term><term>Male</term><term>Medical Informatics (organization & administration)</term><term>Medical Oncology (organization & administration)</term><term>Needs Assessment</term><term>Neoplasms (therapy)</term><term>Palliative Care (organization & administration)</term><term>Patient Education as Topic (organization & administration)</term><term>Patient-Centered Care (organization & administration)</term><term>Pediatrics (methods)</term><term>Physician-Patient Relations</term><term>Prospective Studies</term><term>Quality of Health Care</term><term>Young Adult</term></keywords><keywords scheme="MESH" qualifier="methods" xml:lang="en"><term>Pediatrics</term></keywords><keywords scheme="MESH" qualifier="organization & administration" xml:lang="en"><term>Medical Informatics</term><term>Medical Oncology</term><term>Palliative Care</term><term>Patient Education as Topic</term><term>Patient-Centered Care</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Neoplasms</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adolescent</term><term>Child</term><term>Child, Preschool</term><term>Communication</term><term>Female</term><term>Humans</term><term>Male</term><term>Needs Assessment</term><term>Physician-Patient Relations</term><term>Prospective Studies</term><term>Quality of Health Care</term><term>Young Adult</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p id="P1">Pediatric palliative care is an organized method for delivering effective, compassionate and timely care to children with cancer and their families, but it currently faces many challenges despite advances in technology and health care delivery. A key challenge involves unnecessary suffering from debilitating symptoms, such as pain, resulting from insufficient personalized treatment. Additionally, breakdowns in communication and a paucity of usable patient-centric information impede effective care. Recent advances in informatics for consumer health through eHealth initiatives have begun to be adopted in care coordination and communication, but overall remain under-utilized. Tremendous potentials exist in effective use of health information technology (HIT) to improve areas requiring personalized care such as pain management in pediatric oncology patients.</p><p id="P2">This article aims first to identify communication challenges and needs in pediatric palliative cancer care from the perspectives of the entire group of individuals around the pediatric oncology patient, and then to describe how adoption and adaptation of these technologies can improve patient-provider communication, behavioral support, pain assessment, and education through integration into existing work flows. The goal of this research is to promote the value of using HIT standards-based technology solutions and stimulate development of interoperable, standardized technologies and delivery of context-sensitive information through user-friendly portals to facilitate communication in an existing pediatric clinical care setting.</p></div></front></TEI><affiliations><list><country><li>États-Unis</li></country><region><li>District de Columbia</li><li>Maryland</li><li>Massachusetts</li></region></list><tree><country name="États-Unis"><region name="District de Columbia"><name sortKey="Madhavan, Subha" sort="Madhavan, Subha" uniqKey="Madhavan S" first="Subha" last="Madhavan">Subha Madhavan</name></region><name sortKey="Boone, Keith" sort="Boone, Keith" uniqKey="Boone K" first="Keith" last="Boone">Keith Boone</name><name sortKey="Chou, Wen Ying Sylvia" sort="Chou, Wen Ying Sylvia" uniqKey="Chou W" first="Wen-Ying Sylvia" last="Chou">Wen-Ying Sylvia Chou</name><name sortKey="Dente, Mark" sort="Dente, Mark" uniqKey="Dente M" first="Mark" last="Dente">Mark Dente</name><name sortKey="Hesse, Bradford W" sort="Hesse, Bradford W" uniqKey="Hesse B" first="Bradford W." last="Hesse">Bradford W. Hesse</name><name sortKey="Sanders, Amy" sort="Sanders, Amy" uniqKey="Sanders A" first="Amy" last="Sanders">Amy Sanders</name><name sortKey="Shad, Aziza T" sort="Shad, Aziza T" uniqKey="Shad A" first="Aziza T." last="Shad">Aziza T. Shad</name><name sortKey="Shusterdg, Alex" sort="Shusterdg, Alex" uniqKey="Shusterdg A" first="Alex" last="Shusterdg">Alex Shusterdg</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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